Tuesday, August 28, 2007

Tuesday Update after Dr. Meade stopped in

Trish will start receiving her Cytoxan tonight. They will start pre-hydration probably within the hour, than infuse cytoxan over two hours and than another few hours of hydration.

She'll be NPO (no food/drink) after midnight and than get a liver biopsy tomorrow morning, not sure what time yet. The best news is that her GvH appears to be in the skin and liver only. Gut (intestinal) GvH is a much harder foe.

She will get two days of cytoxan and than wait for her blood counts to recover. She should get almost immediate relief from the GvH symptoms (within a few days), but her blood counts will take a about 28 days to come back. They came back after transplant faster than that and they were predicted to take 28 days than too, so her counts may recover quicker.

There is a risk wih the cytoxan therapy of increasing her chance to get Leukemia again, but it is a small chance and at the moment she is Leukemia free.

On the positive side, Trish only weighs 86 pounds (did I say positive?), at the end of her very first chemo rounds, Trish weighed 87 pounds and looked like a starved child from Ethiopia in an ad for the Christian Children's fund. She weighs a pound less and looks fine. Dr. G visited today and said she looked great and she really does. Ok some remnants of peeling skin, no hair and yeah you can see her bones, but she looks good.

We just all need to work very hard over the next several days to keep her spirits up. Thanks to those of you who have already made the effort, you will never know the huge significance of what seems like a small call or email -- it is far more powerful than you can imagine.

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