and nothing new...They took another biopsy, as expected. That's Trish's 3rd and Dr. Boleanos-Meade - The GvH doc - says she'll never need a face lift or tummy tuck by the time they are done with all their skin biopsies. (That's just bad doc humor, the skin biopsies come from the arm or leg.)
The one bright spot was that Dr. Meade said if the biopsy is still negative for GvH the will formulate a treatment fo Trish that is more than a Medrol pack and less than GvH treatment. Because whaever it is - it isn't going away and it hurts like hell. Imagine the worse sun burn you have ever gotten and if you have gotten the kind of sunburn where wearing any clothes or making any movement sends excruciating pain through your whole body, multiply that by 100 and that's what Trish has. If you have had any less of a sunburn, multiply it by a few 1000 and you might come close. What makes this even worse is that it is all over - even in the places the sun can't reach. (Collective ouch).
We hope to get a call tomorrow from the GvH team askingus to come in and begin treatment. The GvH NP (nurse practitioner) told us today that once they begin treatment relief is quick -- they just won't start treatment until they are sure. Trish has been enduring varying degrees of this pain for over a week now and I am tired and helpless. It has been very frustrating. Tomorrow is a new day and hopefully it will bring a treatment.
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