Monday Update

Trish's billirubin went up again today, but other liver function signs (enzymes) showed improvement. I think Trish got a little bummed because she could actually see her yellow eyes and skin today. Dr. G came by and gave her a pep talk and she perked up after that. Sometime tonight they will do an ultrasound of her liver and than tomorrow morning will be the decision day.

The decision? What to do next -- the options that we know about would be to continue to wait and let the steroids and FK506 work some more or start a chemo regimen of cytoxan at a dosage equal to the post transplant dose (which was about half the dose of the pre-transplant dose), both of which are more than the CloSi dose of cytoxan.

She still has a way to go to complete all of her skin peeling and Vicki the CNP for GvH says she may be in for one more layer of skin peeling - yuck. In the meantime she is cold and sweating, she doesn't have a fever, but the steroids could be blocking the fever.

Look for an update tomorrow around Noonish for the game plan.