Tuesday - no IPOP - no results yet

Today is a day off from IPOP and that's probably a good thing since Trish hasn't really gotten out of bed today. She is in excruciating pain everytime she moves. I keep taking her temperature as often as she will let me hoping that it will be hot enough to call in to the doctors and maybe bring her in. She flirts just under the fever threshold that requires us to call in.

She is eating and drinking though. I think the medrol pack steroids just pissed off her body. We haven't heard back from the graft vs host disease team yet today. I did email Dr. G and she emailed me back saying that the biopsy was not yet read, but it was in as a rush and should be read late today or early tomorrow. She also made some suggestions for the pain.

Last night we went to the dinner that the nurses from 5A did for all of us staying in the hospital housing. It was a great dinner and it felt like a family holiday, we know all the 5A nurses so well it was like being with family. During the dinner, I told them it is weird to be hoping for a positive biopsy. Positive meaning that Trish has GvH, but that is what we find ourselves doing. She needs to be treated but they won't treat her till they know for sure.

To add some fun to our night. Trish fell when she was getting up to use the bathroom. She was just a little off track and fell over a storage bin we keep our stuff in. She didn't hit anything, but she did scrape up her legs and arms pretty well. When I picked her up, she started to pass out. I have to say - even in the middle of the night -- my reflexes in this situation have gotten much better. I was able to lay her out flat on the floor so fast that her body normalized quickly and she never lost consciousness. Who knew stopping a fainting spell could be an art form. The first time this happened, I tried to hold her up and she completely fainted. This time as soon as I felt her starting to go limp, I laid her gently on the floor -- this is a first aid tip folks....in case you ever encounter a fainting person. The faster you get them prone on the floor the better.

Looks like nothing will happen till morning, unless her temp goes above 38 centigrade. Stay tuned. Hopefully some treatment news tomorrow.