Welcome to Sunday. Trish and I enjoyed escaping downtown and our hospital sponsored apartment yesterday. We went to the Havre de Grace art show with Aunt Mary and John. We had a home cooked meal -- fresh eggplant and veggies in angel hair and Aunt Mary's famous chicken fingers.
For the last few days, Trish has looked like she was getting better. Her face's puffiness reduced quickly after starting the steroids and a few days later the redness in her skin started to reduce and around her elbows and knees it pretty much cleared up completely.
However, last night she showed me her belly and it actually looked redder. This morning, she woke up with a puffy face again. She says she doesn't feel much worse, but she's coughing, has redder patches and puffiness. When I asked about going into IPOP today just for a quick check, she didn't object as strongly as she would have normally. So I called into IPOP and asked if we could come in. Maybe it is just the country air. Maybe it is a cold. Maybe it is GvH disease. I don't think we should wait till Monday morning to find out. So, we'll head down to IPOP this afternoon for a quick check and back in on Monday for a GvH appointment.
Just when you thought you may be catching a break, you get reminded that this is a tough journey. A journey takes time. It takes you away from the things that are "normal". It is also a chance for discovery and excitement -- both good and bad.
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