This week has had its surprises. Trish slept well after the biopsy yesterday and she felt fairly well. This morning she is a little sore in the liver area. She woke up this morning with nausea and headaches again. So she had some ativan and fluids this morning. They also sent us for a head CT, to make sure nothing was going on up there. She sleeping now as she starts cycle 5 of her ECP treatment. Next week we could only get one ecp treatment scheduled. I wish we could get two and still hope Tom will call us with a cancellation.
Trish's billirubin was up today, but not by much. They also increased her prograff dose -- again -- 3 pills, twice a day now. Tom the ECP manager just told me he wished Trish's T-Cell bag was not so green....why?... the machine would work better if it weren't so green.....He we need the machine to help us get rid of that green....
I don't know how this all will end, all we can do is keep placing one foot in front of the other and hoping for the best. Thanks for your support.
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