I know that a number of you have been clicking away looking for an update since the good news Saturday post and have been worried because there has been no news.
Well someimes you just get carried away with stuff that needs to be done, sometimes you just get too tired. Please know that we appreciate your support and concern. There indeed continues to be good news.
Despite the lack of updates, you may have noticed that the Counts page has been updated and Trish's liver enzymes are nearly normal and her billi dropped significantly today. She was able to convince the docs to remove her nasal feeding tube this morning and has been eating ok today. I think the feeding tube was helpful. She is still dramatically underweight, but her legs, arms and face have filled out and she looks more normal now than she had looked in recent weeks.
She is slated to be discharged sometime after Wednesday. We will likely do at least two weeks of IPOP as an outpatient and than head home. I purchased tickets tonight, while we still have insurance. If we get to come home on the date I bought the ickets for -- we will leave on Friday Nov. 9 and be home around 2pm on Nov 10th. Don't count your chickens quite yet....we are still in day-to-day mode, even though it is starting to look real good.
It's interesting how things can change here. Our own story has had its ups and downs. From uncertainty over Trish's liver status to hope that things are going well. In recent weeks, we've been frustrated seeing people who were much sicker than Trish getting discharged and going home. We're not jealous, just frustrated. Now it looks like we will finally get our turn in a few weeks to be discharged, we will leave so many people behind who have been struggling for their own miracle. Hoping that they can be next. Hoping that they will not receive a set back. That they can move a step closer to freedom. To be disease free.
While you spend many hours praying for Trish. Trish and I spend our time praying for those who have become friends fighting cancers and other diseases along side of us. Do me a favor today, please remember our friends in your prayers today.
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