Friday Update

Trish and I were up early this morning (Friday), she had ECP (photo pheresis) this morning. Her liver functions were better today, but not quite as good as they had been before yesterday. If you miss the update, always check he counts. I update that as soon as I get them from the nurses, even if I don't get around to posting an update.

We have the day off tomorrow (Saturday) and will head up to Aunt Mary's and will likely check out of the patient house on Monday. Trish will have an IPOP appointment on Sunday to prep for ECP on Monday. She should have a Mon-Wed-Fri IPOP schedule through our departure and next week will be her last week of two per week ECP treatments. The following week I have one appointment her at Hopkins and we hope to start 1 a week at Memorial West in Pembroke Pines the following week. Keep your fingers crossed and hands crossed in prayer that no hiccups emerge that keep us here beyond our current plan.

Just to get a taste of "normal" today. Trish and I went to Costco and had lunch at Chick-Fil-A -- She ate a grilled chicken patty and tomatoes (basically their grilled chicken sandwhich without the bread). Tonight we cooked a healthy pasta and shared with another couple here at the house. They bought a pizza and Trish was yearning a piece so bad, she took one bite of mine. The stomach ache she got after that should cure her of satisfying those cravings till her digestion gets better post surgery.

I'm tired and have a lot of packing to do tomorrow, so I'm going to get some sleep now, go get a gelato and enjoy your night or day....