Trish woke up with a headache and nausea again today. We rolled across the street to IPOP.....We're not really sure if ECP is causing the headaches, if they are just a common migraine or the result of something else. They are taking her ammonia levels today. Apparently wih a high billirubin you can have high levels of ammonia in your blood and his can cause headaches.
We did get some good news in that they have had a cancellation in the ECP world and Trish is set for two treatments next week (Tuesday and Thursday). Now we can't say it didn't work because of the one week that she only got one treatment....
More later.....
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