Tuesday Mid-day Update

I thought today might be easy...just a long annoying procedure for Trish and we both could sleep in till about 10am, head over for the procedure and I could work for several hours while she was prepped and had her liver biopsy. That's what I thought would be the start of our day.

Instead, Trish woke up with a headache she rated 7 on a scale of 10. She was nauseous and vomitting. We headed over to IPOP to have them check her out and clear her for the procedure. Her temp was good 36.2 cent., but she did feel warm to the touch. They told me to give her .5 of ativan and when we arrived they gave her another .5 via IV. They hydrated her and she felt better. We headed over to CVDL on Blalock 5 for the liver biopsy. Trish slept (from the ativan) through much of the consent and prep stage. They took her in just before 1pm. The doctor from CVDL we spoke to Friday night is doing the procedure. I felt good about that -- he seemed conscientious and caring.

I am waiting for her to get to recovery, when they discharge her I'll take her back to the apartment to sleep. It was anything but what we expected this morning. The nurses just feel that she was dehydrated post the pheresis treatment yesterday. While most of her liver enzymes are still trending down. Her billirubin hit an all time high today - 34. This is a bummer after a few days of small trends down. But we didn't expect a miracle after only one ECP treatment. Her next treatment is tomorrow afternoon at 1pm.

Look for a short update after she is discharged from the procedure late this afternoon.