Weekend Update

So remember when I said I was worried because Trish wasn't having any side effects from this round of chemo......You can forget that. As you know if you have been reading, after Trish's 6th dose of HiDac she developed cerebellum toxicity which resulted in loss of balance and slurred speech. Now she has intense eye pain, the drops that are supposed to help, hurt. She woke up at three am with intense eye pain. We were to have the day off today but instead are driving in and actually I am writing this from IPOP as Dr. Swenin calls the Wilmer eye institute to arrange for an emergency exam to insure that she is ok. So we will likely go from IPOP to Wilmer and than.... This is very frustrating to not be able to help her. She is practically blind at the moment. There are a number of yucky effects that could result from HiDac on the eyes. I guess the good thing is that she didn't have HiDac for her consolidation back in Jan 06 -- that was one of the options back than. I'll likely post an update when we are done later today.