Nothing like waiting to build the anxiousness and keep you mildly annoyed at all times. Today we are waiting -- waiting for an email or a phone call to tell us something - anything....
We were supposed to be on our way home today. We have a Florida oncology appointment tomorrow and don't have one here. Trish will need to have her counts checked sometime soon if nothing else. Trish's immune system is low again (see yesterday's numbers) -- below what we were told she would need to come home originally. There is no sign (so far) that the Leukemia has returned and caused the immune system to come back slowly or ">bounce as it has been doing. It could just be Trish's body and it's reaction to the chemo -- which was pretty strong on the chemo strength scale. At this point we just don't know. Dr. Griffihs was going to consult with the attendings and try to come up with something to tell us.
Possibilities are stay here and wait for the insurance company to be convinced she is ready for transplant; go home for what now could be just a few days, before flying back for transplant or treatment.
We have completed all the pre-transplant tests, except for the dental exam required by the insurance. We have a dental appointment scheduled for next Wednesday in Florida. Just not sure if we will be there for it or not.
Stay tuned....If we hear something and we hope we hear it soon, we will send out another update.
Oh by the way, Trish is feeling great today. Slight headache, but it is definetly not an LP headache and she has more energy than me.
Trish's immune system
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