Saturday....

Trish is lazy today. She's resting more than walking. That's had me concerned a couple of times during the day, but I think she is just tired of it all.

They have her on calorie counting and I think the plan is to release her on Tuesday if she shows she is eating and hopefully gaining weight. She lost a little of yesterday's gain. Overall, though she is doing well and the liver enzymes and billirubin counts are going down. Dr. Meade said he only reason she is still in now is her weight. I argued with him about that and I think Trish appreciated my sticking up for her. I explaned that she vomitted everyday after her transplant until she was discharged and the quickest way to put some weight on her was to discharge her. He said he would consider that. But I am guessing she is in till late Monday or Tuesday. Her nurse pratitioner is off on Tuesdays anyway, so it may be best to start IPOP on Wednesday.

I am adding liver enzyme counts to the counts page and of course her normal counts post GvH Cytoxan treatment. If you know anything about Billirubin or liver enzymes, you might be surprised that Trish is still here. They started coming down just in time.

So stay tuned, keep praying, thinking, writing, calling, encouraging, we could not run this gauntlet without you. Remember that, when you have another friend or relative faced with a similar diagnosis. The emotional, spiritual support are at times the most important part of the care plan. Never assume there are enough other people at play, or you might bother the person -- Bother them -- they will let youknow if the want to be left alone. Don't underestimate your power to be part of the cure!