Tuesday

Yesterday was probably Trish's worse day since the transplant (so far). She sounded awful when I spoke to her in the morning and she didn't sound much better throughout the day. But again the good news is her counts appear to be coming back nicely.



Has anyone else noticed that Leukemia has a press agent? Maybe I am just sensitive to it more than most folks....but a lot of well known people have died of Leukemia in the last year. I always want to know more -- it's just not Leukemia to me....was it CLL, CML, ALL, AML -- what type of AML? Trish is M5. The latest is Bill Walsh football coach extraordinaire ( SF 49ers), before him (just a day or two) Tom Snyder (TV host), Bill Bradley (60 minutes) and a whole slew of others, I thankfully forgot. It just seems weird to me.



Here's another thing I noticed recently (I'm starting to sound like Andy Rooney now).... I am so used to the special care and attention given to Trish at Hopkins that I almost attacked the nurse at Doctors Hospital that took care of Andy last week. Before any IV is aached to Trish's central line or I flush it when she is out of the hospital, it is cleaned with alchohol for at least 30 seconds. With Andy, they were just unscrewing it and screwing in the new bag of stuff -- not a whole lot of attention to cleaning or possible infection.....and ou know that was probabl ok to someone who has a normal immune system. You'll be happy to know I controlled myself and just watched carefully. Another weird thing... I thought hospitals stopped giving pitchers of water to patients....Andy got a pitcher of water in his room. Again, just a way to avoid infection at Hopkins. Trish is only brought a single cup of water, that's thrown out every few hours and replaced and it is drawn from a water purifier in the pantry -- it never sits long. I haven't talked to Trish yet this morning, but will post an update when I do.