Saturday Morning (Tried Friday night) Update

I typed a really nice update last night -- about 30 minutes of tyoing and normally the software I use will auto save what I type....but last night the internet disconnected and everything I typed was lost. Too bad, it was a pretty informative update. Well here's today's update......

Last night Trish started the downward slide that her doctors promised would happen. She is getting pretty severe mucuscitis (throat and nasal passages peeling and becoming raw and painful), she's also pretty fatigued, this should be the full fledged beginning of her rough days. I stayed with her past midnight last night and left Aunt Mary's as soon as I woke up this morning to be with her.

While I was worried, when I arrived at her room, she was sitting in her chair listening to an audio book. She told me she had done some laps this morning as well. Of course about ten minutes in my visit, she was vomitting again and the nurse is about to bring her some "Vitamin A" -- ativan -- known to put Trish to sleep.

I found a medical article that Dr. Griffiths wrote, I put a link to it on the Leukemia Resources page with the other Doctors' links and the article has a picture of our favorite Hopkins Fellow, so if you are interested you can check that out.

Next Saturday is the Dinner Dance to help raise funds for Trish's care. There will be a silent auction of some really cool things Dolphins and Marlins stuff, Time Share weeks and more. I hope to have an on-line version of the auction up early next week so that folks who may want to bid, but can't attend the dinner can do so -- so check for it on Monday or Tuesday.

Also, I haven't had a chance to respond to the many folks who have sent their well wishes since the transplant day, please forgive me -- please know that we did get your call, cards, emails and appreciated them very much.

One last item....We'd like to thank Dan Lebatard and his listeners at "790 The Ticket" -- Dan has started referring folks to our web site and cause and we appreciate it very much. We've known Dan's family for a while as most things in our life that relationship can be traced back to St. Bart's in Miramar. I remember seeing his Mom after church and she would always tell me I was the new and improved model, a refined little Chuck (my Dad). I don't know how refined I am, but I am thankful to have friends like them.