It was great for both of us to sleep in today. Trish had a 10:30a.m. appointment for bone marrow biopsy. The biopsy was done without a hitch, though Trish is breaking out in hives a lot. We were back at the hotel shortly after Noon and I am working in the lounge while she naps in the room.
So here is the plan at the moment.... They will review her biopsy, looking for something called FLT-3 -- if they find it, they have a great therapy for that, if they don't she'll enter another therapy that promises good results.For some more info on FLT3: http://www.hopkinskimmelcancercenter.org/clinicaltrials/protocol.cfm?pID=J0366
The non-FLT-3 Clinical trial that Trish may get can be found here:
http://www.clinicaltrials.gov/ct/search;jsessionid=A099D5156AED07E3764036BD5ABB4156?term=NCT00293410&submit=Search
Either way, they will hold off on admitting her until Monday. We will stop at the hospital on Saturday for a blood test, but that's just a safety check. We should get a call from the shift coordinator Sunday night or Monday asking us to report for admission. They will start an intense round of chemo next week that is supposed to last 40-60 days. If she is put into remission again -- and all indications are that she will be -- they will then complete preparations for the bone marrow transplant. They are scrutinizing 6 potential donors now in preparation -- these six folks matched Trish from the National Donor pool. For more info on Bone Marrow Transplantation, please follow the Leukemia Resources link on the left. The transplant and recovery period from the transplant can be another 100-150 days (this was the total hospitalization period of her first two chemo treatments). Trish needs your support more than ever now. She very matter of factly faced the demons last time with out and thought but that she would be coming back home. This time she is more scared. She will face the demons, no problem, but the alternative endings hover more in her mind this time. Statiscally, looking at the large group study numbers they don't make you all warm and fuzzy. We are taking things one day at a time, but your cards, letters, e-mail -- visits if you can -- will all mean so much more this time and will be needed even more. Trish and I are not very needy people in general; we don't like being dependent on others or accepting help, we'd rather give it. The roll of being in need is very new to us, mostly we just need your love and friendship to help us through this. We know we can count on all of you.
An administrative note: I did create a Google Group to use as a mass email device to let you know when there is significant news. I will send a message using this system after this posting. If you got an email and want to get them do nothing. If you don't get an email and would like to get one, send me your email address at chip@dicomo.net. If you got one and would rather not get one or would like to change the address let me know that as well and we will correct.
So here is the plan at the moment.... They will review her biopsy, looking for something called FLT-3 -- if they find it, they have a great therapy for that, if they don't she'll enter another therapy that promises good results.For some more info on FLT3: http://www.hopkinskimmelcancercenter.org/clinicaltrials/protocol.cfm?pID=J0366
The non-FLT-3 Clinical trial that Trish may get can be found here:
http://www.clinicaltrials.gov/ct/search;jsessionid=A099D5156AED07E3764036BD5ABB4156?term=NCT00293410&submit=Search
Either way, they will hold off on admitting her until Monday. We will stop at the hospital on Saturday for a blood test, but that's just a safety check. We should get a call from the shift coordinator Sunday night or Monday asking us to report for admission. They will start an intense round of chemo next week that is supposed to last 40-60 days. If she is put into remission again -- and all indications are that she will be -- they will then complete preparations for the bone marrow transplant. They are scrutinizing 6 potential donors now in preparation -- these six folks matched Trish from the National Donor pool. For more info on Bone Marrow Transplantation, please follow the Leukemia Resources link on the left. The transplant and recovery period from the transplant can be another 100-150 days (this was the total hospitalization period of her first two chemo treatments). Trish needs your support more than ever now. She very matter of factly faced the demons last time with out and thought but that she would be coming back home. This time she is more scared. She will face the demons, no problem, but the alternative endings hover more in her mind this time. Statiscally, looking at the large group study numbers they don't make you all warm and fuzzy. We are taking things one day at a time, but your cards, letters, e-mail -- visits if you can -- will all mean so much more this time and will be needed even more. Trish and I are not very needy people in general; we don't like being dependent on others or accepting help, we'd rather give it. The roll of being in need is very new to us, mostly we just need your love and friendship to help us through this. We know we can count on all of you.
An administrative note: I did create a Google Group to use as a mass email device to let you know when there is significant news. I will send a message using this system after this posting. If you got an email and want to get them do nothing. If you don't get an email and would like to get one, send me your email address at chip@dicomo.net. If you got one and would rather not get one or would like to change the address let me know that as well and we will correct.
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